I need to heat a bag!!!
Odd right? Though an odd thing to say that is something I say and think on a daily basis. I am a 27 year old on peritoneal dialysis, also known as PD. My condition? End Stage Renal Disease (esrd). At times the journey has been tough and tiring, but I have had very fulfilling moments in my life, full of love and joy from family, friends, and even my medical team, except for Medicare and Medi-cal. They certainly are a pain to work with.
So, let me start on 6/01/2010. Feeling ill and do not know what can possibly be wrong with me. Go to clinic, tell doctor how I feel, inform of previous kidney problems, he immediately says I need to go to the ER. Go to the ER, did not want to accept the problems could be my kidneys. Guess what? It was my kidneys! Bummer right? I was scared! I wanted to scream NO!!! I did not though; I wanted to be strong for my mom and my siblings. During the time we were in the ER I kept blacking out and I remember thinking "I don't see the light! God please don't let this be my time". Coming in and out of it. I was not in good shape. I won't go into details today but maybe one day I will. I was admitted in the hospital.
6/03/2010 was day of surgery for insertion of a perm-cath in my chest for Hemo-Dialysis. Scary? Oh Yes!!! I had heard horror stories about dialysis, I was terrified but I knew it had to be done and God gave me the strength to continue on. So I went to surgery and when I came out they immediately took me into my first treatment of Hemo-Dialysis, once again I was scared that it was going to hurt. Ok, I am hooked up to the machine and the only discomfort I feel is from the surgery but not too bad. I don't feel the blood going out and back in. Ok that is a good sign. First treatment done! “That wasn't so bad”, goes through my head.
I have to have a complete separate paragraph for this part. Night of surgery, my pain medicine is wearing off. It burns where I got the catheter. Oh my goodness I felt as though that spot on my chest was literally lit on fire. The pain was crazy. Actually, I would not consider the sensation of burning pain. That is something completely different, completely. No joke! I can handle pain but burning? Umm... not so much.
Hemo-Dialysis was not so bad. I was fortunate to not really feel any of the symptoms related to Hemo-Dialysis during and after treatments, however, I did not like sitting in a chair 3 times a week for 3 plus hours. Yuck! The worst part was seeing everybody else have to go through it. They were all way older than me and they looked so sad. I wish there was something I could do for them but I knew that I could not provide them with what they really needed because I too was there for the same reason.
Finally 3 months after I started Hemo-Dialysis I was able to go on PD, which has been wonderful. Ok, as wonderful as it can be. I mean I would certainly love the ability to not have to rely on a machine to live but given the circumstances I enjoy it the best. I get to do dialysis every night while I am sleeping and like Hemo there is no pain. I enjoy it and in my personal opinion if you are capable of doing PD go for it. Being a kidney patient requires a lot of dedication to YOU, you must stay on top of everything. Your life and health depends on it. It really is not a game; life is not a game.
Jesus loves you! Yes, he does (whether you know him or not) and he loves me too. God is great people. Believe me when I say that without God in my life I would not be where I am with this and I truly fully with all my heart believe that. I do
Till next time. God Bless!
That was my post. Not much has changed. I am still doing dialysis every night. My husband has been so loving and supportive. God truly has been great to me. He has blessed me oh so much and though I m going through this life threatening disease I feel amazing to be alive and to be able to see my family and friends grow along side me. I hope you have a swell day and I look forward to your visit again.